17. 02. 2020 Issue 68
Raising Public’s Awareness of Rare Diseases

Professor Edwin Chan from School of Life Sciences is devoted to researching different neurological diseases and the work never stops. Recently, he has set up a multi-disciplinary research network called the Nexus of Rare Neurodegenerative Diseases (NRND) to make up-to-date information concerning rare diseases available.

The recently conducted survey led by Professor Chan revealed that patients with rare diseases lacked sufficient understanding towards the patient registry scheme or engagement with it. Two public seminars, as a kick-start, will be organised to raise public’s awareness by dissecting the pathology, treatments, and concerns of those rare diseases. A voluntary team formed by students from various disciplines will then reach out to the patient groups to promote the scheme and disseminate appropriate health information.

It is hoped that with better understanding, the patient registry can be developed into a comprehensive one conducive to pathogenesis research and therapy development.

NRND Website

University Press Release

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Table of Contents
Undergraduate and Postgraduate Graduation Ceremonies
Walk-in Consultation by Science Student Academic Advisors & CV Clinic
Science Alumni Sharing: Steps to become a Science Teacher
Highly Cited Researchers 2019
Newly Elected Member of The Hong Kong Academy of Sciences
Developing Novel Quantum Sensing Techniques to Measure Pressure-driven Superconductivity with Nano-diamonds
Croucher Senior Research Fellowship 2020
Raising Public’s Awareness of Rare Diseases
Revealing Underestimated Carbon Stores in Tidal Wetlands
Redefining Coding and Non-Coding RNAs
Faculty Exemplary Teaching Award 2019
International Science Experience Week 2019 at the United Arab Emirates University
Devising a Rapid Test for a Banana Disease and Wins Gold Award in iGEM Competition 2019
Physics Alumnus Shares Workplace Tips
Outstanding Alumni Service Award – Career Development

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